Not So Fast!

You're gonna hurry up and wait......and wait......and wait......etc., repeat. LOLOL That's how it went today. It seems they waited until just before I was due to come in this time to switch over to a computer format. This seems to have slowed things down a lot today. I didn't wait to long before the woman who oversees the potty room came out to get me. Yup, I had to do the pee pee test today. *sigh* I hate doing it at all, but it's a small price to pay to ensure I continue getting pain management. It's much better than being a curled up ball of blubbering, snot covered, whimpering blob on the couch! :-D

I return to the waiting room and wait. I check my watch and there's 5 minutes....10....15. They didn't pull my dang chart and forgot about me!!! I'm a little put out but my favorite person ever was back this visit. I was quick to forgive. Once I was in the room, it went quickly as usual. After all, I only go to pick up scrips. I told her about the funky things my face has done recently. I'm glad to know she isn't quick to blame rsd but there's nothing else it can be blamed on! RSD pain and burning are unmistakable. You'll never feel anything else like it in this world. We'll see if it keeps happening on a more regular basis over the next 3 months.

I just realized I didn't relate her what that "funky thing" with my face is. I shall remedy that right now. About a handful of times in the last couple of months, I've felt this burning pain in my right cheekbone. When this happens my cheekbone, the whole thing under my eye, turns a bright red. It kind of looks like someone has punched me! It last about an hour or a bit more then goes away. The last time was more intense. This was about a week ago now. The whole right side of my face, from forehead to jawbone turned red. It appeared as if half of my face had gotten sunburned. Putting a hand near my face, you could feel the heat coming off my skin on that side while the left was normal temperature. My cheekbone was a deeper red too. I didn't feel the pain I feel in the rest of my body. The stabbing, shooting type of pain. It was just the heat and burning pain. This is the last place I want rsd to go but it looks like it's going there anyway.

I've used the term burning pain a couple of times now. As with most things rsd I find it hard to explain what this means. The closest I've come to explain the burning is to relate it to something most everyone has experienced at least once. It still falls short of the intensity, but it's the best I can do.

I'm sure all who read this have been burned at least once. I know you remember the burning that lingered for hours. If it was bad enough that lingered for days. Now, multiply that times 100. Now imagine the burning never stops. You feel it not only on your skin, but inside. Not only in the muscles but in the bone marrow. You're lucky if it stops for awhile, but you know sooner rather than later, it'll be back.

You might be asking at this point, but what about the pain? How can a burn be painful? I bet asking the question caused you to have a Duh moment. :-) When you were burned you felt pain. It hurt until the burn started to heal. This is where the pain comes in. The bad part is it doesn't hurt in a small spot, it's a large area. If it doesn't let up, then it's added to the other types of pain that come with rsd. Shooting, stabbing, crushing, ripping, grinding, tearing. I'm sure there are other words I can use but they elude me at the moment. I think you get the picture. RSD pain is more intense than any other you can possibly feel. There's is a pain scale called the McGill Pain Index.



The word Causalgia is RSD. I thought putting this up might help your understanding.

Anyway.....lesson over. lol I shall be back tomorrow. I'm beginning to get tired, so I'm sure rambling isn't far behind. *grins*